Clubfoot Research Foundation's purposes are in research, education and advocacy; including patient and medical professional support. We encourage new research and education in CTEV including new therapies. We have provided assistance and support to 14000 patient members globally in our social media support groups and answer between 700 to 900 questions monthly. We have also provide access to specialized physicians for patients with complex scenarios. You donation will help us continue our pursuing our goals.
This is a form where you can choose the amount to donate and if you want to have it a single donation or reocuring donation. You can also decide what your donation funds. Ex: General Use, Research, Education, Etc.
OTHER DONATION OPTIONS
FUNDS TO DONATE TO:
FUND: Research- Collect all types of data on all aspects of CTEV to publish, fund studies, educate and advocate for all medical professionals and patients afflicted by CTEV.
PROGRAM 1: Publish current research analysis data to NIH, conferences and other medical journals.
PROGRAM 2: Create and maintain a patient registry which includes collecting data, hiring labs, and other necessary personal. Then use the data in the patient registry to fund or publish studies.
FUND: Educate- Take the data we have collected and pass it on to the medical establishment and patients to help better the knowledge and outcomes of those afflicted by CTEV
PROGRAM 1: Provide educational materials such as pamphlets, slideshows and presentations to patient families with a specific focus on the genetic connections and its role in co-morbid conditions.
PROGRAM 2: Provide educational materials such as pamphlets, slideshows and presentations to medical professionals, other non-profit organizations, universities and government entities with a specific focus on the genetic connections and its role in co-morbid conditions.
PROGRAM 3: Fund marketing campaigns through TV ads, radio ads, social media/online ads and pamphlets to teach how CTEV is a genetic disorder influencing other genetic dispositions and that patient should consider long term strategies re care. One size does NOT work in a genetically varied disorder.
FUND: Advocacy- Utilize the data to help those afflicted by CTEV find medical care, therapies and additional knowledge to allow the patient the best possible outcome.
PROGRAM 1: Fund to pay for a volunteer to create, maintain and distribute via mail, email or phone CTEV patient care lists. These lists give patients and their family’s access to doctors and therapies by location.
PROGRAM 2: Run a zoom style online support group to address neurological impacts of the disorder, how it impacts the patient and family, what therapies are available and how to obtain help among all other aspects of the disorder in this neglected patient population. This includes the expense for the online group application and counseling patients who are in distress from their situation.
FUND: Fundraising- To bring in additional income to support our research, education and advocacy efforts in addition to supporting Clubfoot Research Foundation’s business and administration costs.
PROGRAM 1: Run a large online campaign and a large in-person campaign each year in addition to other small fundraising campaigns such as flyers, periodical/online ads or tv/radio ads.
FUND: Office & Administration- All expenses outside the mission of the non-profit.