The Clubfoot Research Foundation started in 2011 with the research and analysis of Mrs. A. Van Rooyen an MBA Graduate and seasoned business educator. After a full analysis of social media and other training resources, the CRF group realized that no education resource existed that specialized in educating both patients or medical professionals. In 2013 the CRF migrated to its current professional discussion group with the mission to spread awareness and knowledge of the different types of CTEV/Congenital Talipes Equinovarus, a.k.a. Clubfoot and to improve education and research for a large group of connected orthopedic disorders.
Being the 1st publisher on social media of many of the current concepts now frequently discussed for CTEV, give the CRF the edge and the quality is outstanding. The CRF was the 1st publisher of 1. A global product list, a doctor review lists per area, resources available globally to patients, concepts such as under and overcorrection, relapse in older patients, 25 new research topics which were discussed with the CDC that lead to new CDC research published in 2014. Medical professionals globally frequently thank us for the quality of education we provide to them quickly and efficiently. We are a registered 501c3 non-profit foundation since 2016 and earned a gold seal for transparency since then every single year.
Today we are pushing research forward with new research topics we present to universities and researchers, we raise funds to support future research that are important to patients, and we help where we can with knowledge and integrity. CTEV has close to 1000 co-morbidities and it is a complex disorder to treat successfully. The research is far behind. Treatment protocols need to include various specialists from different disciplines including genetic testing. The CRF was the first non-profit to advocate for further genetic testing and exploration of genetic research.
CRF Inc. now has a board that includes medical professionals, patients, parent advisors, and other professionals that contribute to make this foundation a success. We offer patient support groups globally. The Clubfoot Research Forum & Foundation is approved by the Internal Revenue Service as a 501(c)(3) tax-exempt organization, and all donations are tax-deductible to the extent provided by law. Our Federal Identification Number (EIN) is 81-2429387.