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UNDERSTANDING THE COMPLEXITY OF

CTEV

Clubfoot or Congenital Talipes Equinovarus (C.T.E.V.) is a genetic or acquired birth defect that can be mild to severe and pain levels range from zero/little to very severe, depending on the type of clubfoot, severity, the outcomes of past treatments, the role of co-morbidities, and the timing of genetic expressions over the lifetime of a patient. It affects one or both feet and other underlying conditions may present initially or present later on. 

 

The causes of clubfoot are multi-factorial ranging from genetic to other environmental influences. There is no rhyme or reason to the inheritance patterns in families.

 

A variety of treatment methods are therefore researched as it is unlikely that one treatment will be effective for all types of clubfoot. The largest research gaps have been passed on to researchers, universities, and physicians on numerous occasions resulting in an increase in research publications the past 11 years as a direct result of our foundation's advocacy efforts.

 

We are proud to be the first non-profit organization that identified the gaps and that started strategic evaluation of validated scientific literature since 1980. In this regard we stand on the shoulders of those that came before us that critiqued the first literature contributions on their blogs. 

 

In recent years we influenced the research topics chosen by PHD students at various universities globally, we played a role in the design of new therapy projects and our work includes all types of CTEV therapies not only the Ponseti method.

 

Recently the Foundation a submitted proposal paper to government and other organizations to illuminate the genetic scope of the disorder and to improve decisions regarding educational structures.  Genetic testing is imperative to understand the disorder. The knowledge also influence what kind of therapies a caretaker would consider in the future and it illuminates the overall prognosis and any new therapy designs as more detail drives these findings.  It basically ensures appropriate therapy based on case specifics.

 

Each patient deserves appropriate and targeted testing to identify the different and varied impact the disorder will have long-term. In this regard please consult with volunteers in our various social media groups that are educated to assist you with understanding the disorder better and who are trained to advise you regarding what testing you need to source and where to source it from.

 

Send an email to info@clubfootresearch.org if you wish to make further enquiries.

 

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