Improving Our Understanding - Benefits All!
THE JOURNEY
The Clubfoot Research FDN provided a more complete description of CTEV published on social media in 2014 that were adopted in included into more recent scientific study descriptions. This description combined with validated scientific literature evidence inspired new research efforts already and literature expanded in this disorder to include many new topics for discussion in the future.
The diagram of the Golden Thread published in our blog in 2016 further led to new questions and renewed physician interest in CTEV that we answer as best we can.
Today public research databases reflect a substantial increase in the scope of scientific study titles and the overall number of studies published per year for CTEV.
Other Completed or Ongoing Projects - See the Home Page
The collaboration burden in CTEV is extremely varied and includes a wider scope of effort than in other less complex disorders:
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All other Health Non-Profits and Businesses - For example: We provided an environmental analysis for a Veteran Disability Study Project - 2023
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A Special Olympics Committee: Analysis of CTEV Athlete Participation Analysis in Sports- 2019
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Advocacy for non-invasive therapies for patients that completed the Golden Standard Method after 4 years old until adulthood.
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Orthotic companies that benefited from our work include C-Pro Direct, Cunningham Prosthetics, Dobbs Brace Company, Exosym (Hanger), Fabtech PDE, Momentum, AFO/KAFO/DAFO brace companies like Hanger Orthotics, the French Functional Methods, the Mili Method, Physical Therapists and Kinesiotaping practitioners etc.
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Increasing awareness of CTEV and Neurological Disorder Risk 2012-2025. Aiding doctoral students with research projects at universities with data and educational insights.
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Participate in Genetic conferences and discussions at the NIH, Tracks4Kids, and other Genomic Discussions since 2017.
Ongoing Projects to Improve Education & Research
We continuously do datamining the find new products to introduce options and access points to the CTEV patient populations as this disorder cannot be fully addressed with a single solution.
Increasing access for older patients to new and existing non invasive therapy options is ongoing.
We increase awareness regarding educational opportunities for physicians and other role-players globally by sharing the opportunities across our global groups. This leads to increased attendance of training offered by disease experts that eventually results in a new therapy access point for patient families.
We gather data continuously to aid new study topics.
Other Residual Changes & Wins
1. Validated Scientific Study contributions doubled between 2011-2025.
2. Education and Customer Service from Product Businesses Improved as our social media feedback platforms allowed the collection of issues and problems that companies could address quickly and directly with a patient group. - There is less waiting regarding product delivery all over from increasing provider insights that patients cannot go unbraced at all for extended periods: Results in improved outcomes.
3. Improved access to alternative methods - Improves Outcomes for cases not responding to traditional standard interventions - increasing data entering this arena.
4. Improving other non-profit education and research targeting where we spot limitations.
Changing The Future!
Our education efforts ensure that patients and caretakers develop a better understanding of their diagnosis and therapy options available. We do this by providing comprehensive translational research data, information and genetic education that we procure analyzing numerous data points. This means including all disease data for considerations.
Medical Professional feedback and confirmation of our work appears on Non-Profit Measuring Platforms such as Great-Nonprofits that collects feedback - A few are displayed on the website on the Home-Page.
For the future of CTEV and with the knowledge we have procured the education in this arena will be gradually be improved through our own medical journal publications or the publications we steer towards new topics. Please use the form on our website to send donations and join our mailing list and groups on the website!