Grassroots Initiative

The Clubfoot Research Foundation is a Grassroots Initiative with the aim to improve outcomes for CTEV and its Co-Morbid disorders assisting patient families since 2012.

 

Our Vision: “Change the Future” to improve outcomes for CTEV patient families.

 

Our Mission: To increase awareness, education and support for CTEV patient families and medical professionals - to steer new data capturing efforts to expand and improve the quality of scientific research efforts in CTEV to support the development of new therapies/cures for CTEV and its associated Co-Morbidities.

​Why Donate To The CRF?

Our role across multifaceted projects over more than a decade is visible and ongoing - shaping the future of data collection and research!  

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First and Only!

The CRF was the first patient led educational resource registered as a 501 (3) in the USA. We provide education to all stakeholders to improve and expand the quality of research about CTEV and its associated co-morbidities.

 

To achieve these goals the CRF completed a translational analysis process and produced documents and publications to research projects, conferences, providers, and other organizations to increase the quality of such projects or improve the understanding of the disorder in discussions and more.

 

1. Global Universities such as Pennsylvania, Scotland, Malaysia, South Africa, New Zealand, Harvard and more (2013-2025).

2. Provided data for a new Psychological PHD study 2023-2025 - published in 2025.

3. Support Orthotic Companies such as C-Pro Direct, Cunningham Prosthetics, Hanger Orthotics, D-Bar (Dobbs Brace) and engineering or physical therapy students globally to improve access and education about the role of products or aid the design process to improve access and products delivered to the CTEV patient population.

4. Shriners Multicenter Study Group (2022), Older Kid-to-Adult Outcome Study - Analysis provided.

5. NIH (2022)  - The CRF was the first organization advocating for increased genetic research funding at the National Institute of Health, publishing an abstract to an NIH conference in 2022. This effort yielded increased funding as from 2024 for new genetic research in the future.

6. Talipes Treatment Initiative (TTI: 2021). 

7. CDC (2014) - Provide 24 Research Gaps about CTEV. 

8. The Clubfoot Research FDN was one of the earliest adopters of using social media in non-profit education expanding the reach globally to learn. 

9. The Clubfoot Research FDN created the first alternative description for CTEV, Published a specialist physician referrals list and brace progression list 2012 and 2013.

10. The Clubfoot Research FDN increased awareness of global Physical Therapy and Kinesiotaping Methods, introduced the Mili Method to social media - increasing patient awareness and expanding access to therapies patients can source globally. Medical professionals benefit as it inspires the testing of more hybrid therapies - leading to improved outcomes and new scientific literature added to the current knowledge. 

11. The Clubfoot Research FDN created the first literature categories to simplify education for patient families and other stakeholders since 2012 on social media - reaching the corners of the globe that education aids patient families to find access to therapies not delivered in their immediate environments.   

11. The Clubfoot Research FDN advocated successfully for the recognition of mental health impacts in CTEV and its associated Co-Morbidities - Slideshows published in 2017 to a conference and physician groups inspired new scientific studies on this subject in CTEV literature.  

12. The Clubfoot Research FDN continuously study new data and incorporate varied data sources into our existing insights to aid future projects. This allows us to provide suggestions to patient families no matter the age of the patient, the diagnosis or the complexity. Nursing and Physician Patients confirm that we have helped them navigate their own health journeys. Over 40 testimonies are available at the Great Non-Profits.Org organization.​

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​What Do We Provide?

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Care

We are the first step toward hope and progress whether you are wondering about a diagnosis, options, availability of therapies or specializations in your area. We help with disease-specific research and resources no matter where you live where possible. We can help you find expert care and are continuously growing this knowledge for the future. Our expert referrals are based on case specific detail that takes more time and effort, but it is essential to CTEV patient families. 

Education

We strive to continuously improve education, sharing our insights where it matters to ensure gaps are addressed through additional scientific studies as evidence have been limited and research gaps are extensive.

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Research

We strive to accelerate and advance new innovative solutions providing data to organizations such as Universities and other Non-Profit organizations, Students and Hospitals.

 

Community

We have many diverse support and educational discussion groups. This helps you connect with others in your state or country at least for tips and information. See our groups on this website and on Facebook. Search for Clubfoot (and add the Country Name or State in the USA). We frequently help nurses and physicians with their health conditions and have feedback that our insights helps them manage or navigate complex situations - ensuring that the therapies to include are accurate and appropriate.

Honorary Mentions!

We honor the giants that started before us with literature analysis 44 plus years ago! CTEV affects patients from all walks of life, including medical professionals. Your dedication, passion, analysis and feedback forms the basis of the intellectual capital we continue to build on in this organization. It is the only pathway to improve the quality of life for all CTEV patients!