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RSVP by Nov 29, 2022
to enter a drawing for FREE CRF t-shirts

This is a randomized drawing from everyone who RSVP's to the 2022 Giving Tuesday Event. The single winner will receive a free CRF standard t-shirt for each member of their immediate family (dad, mom & children only). Winner will also be posted in the Event FB Group and notified by the email used upon registering. Winner will be announced Wed, Nov 30, 2022. 

PROGRAMS YOU CAN DONATE TO:

RESEARCH: We strive to learn everything there is about CTEV to create new research, fund studies and publish new information to further others research. We are always looking for and collecting new data to further this goal.

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EDUCATE: We strive to work collectively with medical establishments, universities and other non-profits to bring CTEV education to the medical professionals, staff and patients with the goal of advancing CTEV knowledge for everyone. In addition, we hope to bring all of this knowledge to the community to remove the stigma that comes with CTEV "Clubfoot." This education would be presented as, but not limited to, pamphlets, slideshows, presentations, social media platforms, television and radio ads.

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Free Stock photos by Vecteezy

ADVOCATE: We are working to create and implement a systems of support for those affected by CTEV/Clubfoot. By doing so, we are pursuing to create email & mail lists to forward our knowledge of doctors and therapies by location for patients and families. We are also creating several other lists for everything that impacts a CTEV/Clubfoot family. We hope to eventually have all lists accessible via our website soon.

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FUNDRAISE:  As with all non-profits, we need financial assistance in pursuing the goals of the organization. One of our goals is to take the data and research we have collected and present it at an event that we will host while raising money to further our research. This event will require funds to make it happen. In addition, we are creating flyers and advertisements to have available to everyone. We are also working on putting together annual online and in person events to support the cause for CTEV/Clubfoot through our programs listed above. The CRF is asking for your financial support in pursuing these activities.

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Photo by Katt Yukawa on Unsplash

BUSINESS EXPENSES:  All organizations have expenses outside the mission of the non-profit. These are Office & Administration expenses. Currently, there are only 2 active staff members. We also have several support staff, a board of directors and a medical board. Everyone is working on a volunteer basis. We need assistance in paying for the computer expenses, travel to educate expenses, presentation software and devices along with data storage, security programs and bookkeeping expenses. 

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FUND: Advocacy- Utilize the data to help those afflicted by CTEV find medical care, therapies and additional knowledge to allow  the patient the best possible outcome.

PROGRAM 1: Fund to pay for a volunteer to create, maintain and distribute via mail, email or phone CTEV patient care lists. These lists give patients and their family’s access to doctors and therapies by location. 

PROGRAM 2: Run a zoom style online support group to address neurological impacts of the disorder, how it impacts the patient and family, what therapies are available and how to obtain help among all other aspects of the disorder in this neglected patient population. This includes the expense for the online group application and counseling patients who are in distress from their situation.

FUND: Fundraising- To bring in additional income to support our research, education and advocacy efforts in addition to supporting Clubfoot Research Foundation’s business and administration costs.

PROGRAM 1: Run a large online campaign and a large in-person campaign each year in addition to other small fundraising campaigns such as flyers, periodical/online ads or tv/radio ads.

FUND: Office & Administration- All expenses outside the mission of the non-profit.

FUNDS TO DONATE TO:

FUND: Research- Collect all types of data on all aspects of CTEV to publish, fund studies, educate and advocate for all medical professionals and patients afflicted by CTEV.

PROGRAM 1: Publish current research analysis data to NIH, conferences and other medical journals. 

PROGRAM 2: Create and maintain a patient registry which includes collecting data, hiring labs, and other necessary personal. Then use the data in the patient registry to fund or publish studies.

FUND: Educate- Take the data we have collected and pass it on to the medical establishment and patients to help better the knowledge and outcomes of those afflicted by CTEV

PROGRAM 1: Provide educational materials such as pamphlets, slideshows and presentations to patient families with a specific focus on the genetic connections and its role in co-morbid conditions. 

PROGRAM 2: Provide educational materials such as pamphlets, slideshows and presentations to medical professionals, other non-profit organizations, universities and government entities with a specific focus on the genetic connections and its role in co-morbid conditions. 

PROGRAM 3: Fund marketing campaigns through TV ads, radio ads, social media/online ads and pamphlets to teach how CTEV is a genetic disorder influencing other genetic dispositions and that patient should consider long term strategies re care. One size does NOT work in a genetically varied disorder. 

FUND: Advocacy- Utilize the data to help those afflicted by CTEV find medical care, therapies and additional knowledge to allow  the patient the best possible outcome.

PROGRAM 1: Fund to pay for a volunteer to create, maintain and distribute via mail, email or phone CTEV patient care lists. These lists give patients and their family’s access to doctors and therapies by location. 

PROGRAM 2: Run a zoom style online support group to address neurological impacts of the disorder, how it impacts the patient and family, what therapies are available and how to obtain help among all other aspects of the disorder in this neglected patient population. This includes the expense for the online group application and counseling patients who are in distress from their situation.

FUND: Fundraising- To bring in additional income to support our research, education and advocacy efforts in addition to supporting Clubfoot Research Foundation’s business and administration costs.

PROGRAM 1: Run a large online campaign and a large in-person campaign each year in addition to other small fundraising campaigns such as flyers, periodical/online ads or tv/radio ads.

FUND: Office & Administration- All expenses outside the mission of the non-profit.

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